Sydney, New South Wales Jan 14, 2023 (Issuewire.com) - The Frankie Foundation
Email: hello@thefrankiefoundation.org
Website: https://thefrankiefoundation.org/
Mobile: 0416128470
Social Media:
LinkedIn: https://www.linkedin.com/company/the-frankie-foundation-australia/
Facebook: https://www.facebook.com/TFFAU
Instagram: @thefrankiefoundationaustralia
About The Frankie Foundation:
Many families with young children (under 12) are getting underfunded or just get plans that don’t go the distance (the budget doesn’t last the period of the plan). Reviews can only be done a minimum of 100 days out for plan expiry and take a minimum of 6-8 weeks to approve, this leaves children with no remaining budget.
Families are having to find funds from their family budgets or stop therapy altogether until the new plan can be approved and the budget released. Children are at risk of regression without therapy and in many cases, they will lose their therapist, as the waitlist for therapists and assessments is around 6 months.
The Frankie Foundation is quite unique in the sense it really is the first of its kind. There is no other charity or non for profit looking to help families bridge the financial gap with their children’s NDIS plan and purely raise money to fund existing therapy when a child’s NDIS plan runs out.
TFF award grants to the families and will directly pay their therapy bill.
The Frankie Foundation’s Goal:
The Frankie Foundation’s goal is to offer families some support by awarding grants from $200-$2000 to pay for their child’s therapy. This may be 1 session or 10, depending on how much gap they have and what we can provide.
Who is Frankie:?
The Frankie Foundation’s Founder Kym Gleeson’s daughter Frankie is 8 and has an extremely rare genetic disorder called Acrodysostosis, she is 1 in 137 known cases worldwide. Complex neurogdergent and developmental challenges and medical needs.
https://www.acrodysostosis.org/
Frankie lives with a rare disease, global developmental delay, Autism, OCD, sensory processing disorder, ADHD, skeletal dysplasia, speech delay, and physical disabilities due to the size and shape of her hands and feet, and has Hydrocephalus. She will likely live with a brain shunt for the rest of her life.
Frankie is on the NDIS and each year her support budget doesn’t cover her developmental, physical & behavioral needs just like thousands of children with special needs, disabilities, and medical and neurogdergent challenges.
So, through the lived experience of raising a child with complex needs, Frankie’s mum Kym knew more had to be done, so The Frankie Foundation was created.
The Frankie Foundation has been built to help families bridge the gap between the funding budget and the reality of the support needed to provide Therapy, Services, and Equipment to ensure these children get the best possible start in life.
Kym knows extremely well that early intervention is key to the future success of many of these children and will give them the best possible start in life.
About our Founder:
Kym Gleeson is the founder of the Frankie Foundation & Co-Founder of Acrodysostosis Support and Research and Frankie’s committed and devoted mother. Kym is passionate about inclusion, and accessibility in education and community. And creating and providing equal opportunities for people with rare diseases, disabilities, and additional needs, to ensure everyone has the opportunity to live their best life. Kym comes from a media and advertising background that spanned over 25 years in commercial outcomes and marketing in Radio, Print, Digital, Outdoor, and Publishing industries.
https://www.linkedin.com/in/kymie-gleeson-32050534/
Frankie Foundation Launch Date: Friday 13 January 2023, Frankie Gleeson’s 8th Birthday.
Media Contact
The Frankie Foundation hello@thefrankiefoundation.org 0416128470 http://www.thefrankiefoundation.org
